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Fibromyalgia

· What Is It?

· Symptoms

· What Your Doctor Looks For

· Diagnosis

· Expected Duration

· Prevention

· Treatment

· When To Call Your Doctor

· Prognosis

· Additional Info

What Is It?

Fibromyalgia is a syndrome, or collection of signs (findings on exam) and symptoms (complaints), with no known underlying disease process. It may well be that the fibromyalgia syndrome (FMS) can actually result from many different underlying causes. Some scientists have suggested that it is related to abnormalities in a non-dream part of the sleep cycle or to low levels of serotonin, a brain chemical that regulates sleep and pain perception. Other theories have linked fibromyalgia to low levels of somatomedin C, a chemical related to muscle strength and muscle repair, or to high levels of Substance P, a chemical involved in pain perception. Some scientists have also cited trauma, blood flow abnormalities in the muscles, nonspecific viral infections or Lyme disease as possible causes of fibromyalgia.

Fibromyalgia strikes about 3.4% of women and 0.5% of men in the United States, affecting 3 to 6 million Americans. Although this disorder occasionally occurs in children and young adults, it most commonly affects women of childbearing age or older. In fact, some statistics indicate that more than 7% of women in their 70s suffer from fibromyalgia.

Although many patients with fibromyalgia also suffer from psychiatric problems such as depression, anxiety or eating disorders, no definite relationship has been proven.

Symptoms

Fibromyalgia can cause pain and stiffness almost anywhere in the body, including the trunk, neck, shoulders, back, hips and joints. Pain may be either a general soreness or a gnawing ache, and stiffness is often worst in the morning. Typically, patients also complain of feeling abnormally tired, especially of waking up tired, although they may not recall having specific sleep disturbances. Patients with fibromyalgia also have discrete painful body areas called tender points. The American College of Rheumatology (ACR), in its list of criteria for diagnosing fibromyalgia, lists 18 typical tender points.

What Your Doctor Looks For

After asking about your symptoms, your doctor will check for swelling, redness and impaired movement in those portions of your body where you are having pain. Your doctor will also check for tenderness in the 18 specific tender points designated by the ACR.

Diagnosis

To confirm the diagnosis of fibromyalgia, a patient must have suffered at least three months of widespread pain, and must have tenderness at 11 or more of the 18 specific ACR tender points. To evaluate the tender points, your doctor may use either simple hand pressure, or a spring-loaded pressure instrument called a dolorimeter.

Expected Duration

By definition, the widespread pain of fibromyalgia must last for at least three months, although many patients experience pain for much longer periods. In 10% to 25% of cases affecting adult workers, symptoms are so persistent and so severe that patients can no longer perform their normal jobs.

Prevention

There is currently no way to prevent fibromyalgia, since its definite cause remains unknown.

Treatment

To relieve the pain of fibromyalgia, your doctor will generally prescribe either aspirin or non-steroidal anti-inflammatory drugs (NSAIDs), such as indomethacin or naproxen. Your doctor may also suggest that you try one or more of the following therapies: acupuncture, massage therapy, warm compresses, biofeedback, hypnosis, group therapy, or stress-management therapy. To improve sleep, your doctor may prescribe an antidepressant medication to be taken before bedtime. To improve exercise tolerance and general well-being, your doctor may also suggest a program of low-impact aerobic exercise, usually 20 to 30 minutes daily for three or four days a week. If you have symptoms of depression or anxiety, these may improve with psychotherapy and/or antidepressant or anti-anxiety medication.

Note: Every FMS patient is different, so an individual patient may have a significantly different treatment plan than the usual measures outlined above.

When To Call Your Doctor

Call your doctor whenever chronic pain or extreme tiredness interferes with your ability to work, sleep, perform normal household chores or enjoy recreational activities.

Prognosis

Current studies do not agree about the prognosis of people with fibromyalgia. For example, results from some specialized treatment centers show a poor prognosis, while community-based treatment programs show remissions in 24% of patients and symptom improvements in 47%.

Last updated April 20, 1999(Intelihealth-John's Hopkins Health Information)

Additional Info

For additional information about fibromyalgia, you can contact:

Fibromyalgia Network
P.O. Box 31750
Tucson, AZ 85751
Phone: (800) 853-2929
www.fmnetnews.com

The Arthritis Foundation
1330 West Peachtree Street
Atlanta, Georgia 30309
404-872-7100
www.arthritis.org

National Institute of Arthritis and Musculoskeletal and Skin Diseases
National Institutes of Health
1 AMS Circle
Bethesda, MD 20892-3675
Phone: 301-495-4484
www.nih.gov/niams

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